• 2019:
  • All our Volunteers!,
  • Rusal Aughinish Alumnia Ltd.,
  • Kate Young & Cora Byrnes,
  • Milford NS,
  • Our Lady Queen of Peace NS,
  • Le Cheile NS,

Weekly News Digest - Down Syndrome Ireland

 

DSI Digest

 

 If you have not received your weekly news digest, please email us requesting same; This email address is being protected from spambots. You need JavaScript enabled to view it.

 

 

 

December 14th, 2018

 

 

Dear Member,
We hope you enjoy this DSI Digest - a short, regular round-up of weekly news from the DSI Team.

As always, we welcome your feedback.

 

 

Report of the National Disability Authority (NDA) on ECCE overage exemptions launched

 

 

In May 2018, representatives from Down Syndrome Ireland, along with a number of parents of young children with Down syndrome, took part in a consultation process regarding ECCE overage exemptions.

On the 29th of March, 2019, the report resulting from this consultation, compiled by the National Disability Authority (NDA) was launched.

Continue reading here...

 

 

 

People's Choice Winner – Google Impact Challenge 2019

 

 

We were absolutely delighted to be voted People’s Choice Winner at last Thursday's Google Impact Challenge awards in Google HQ. We have been awarded €100,000 towards further developing our Ability Programme in Dublin as well as technical support from the team at Google.

Read more here...

 

 

 

SHOWSTOPPERS

 

 

Here's a story of ability, friendship and endeavour among a group of drama students with Down syndrome.

This documentary follows their journey as they prepare for their first professional performance – One Love – before stepping further into the world of theatre through the formation of a touring stage company.

While working towards their first professional theatre production, the students also open their lives to the viewers, discussing their jobs, their friendships and their loves.

Watch the full documentary here...

 

 

 

CAMINO 4 DSI INFORMATION EVENING

 

 

Thinking about doing the Camino this year?

DSI will be holding an Information evening about September’s upcoming Camino 4 DSI ?

Please join us on: 
Thursday, April 11th at 6:30 pm - 7:30pm 
Follow The Camino’s office 
(1st Floor 34 Baggot Street Upper, Dublin).

If you have any questions about the event or what is involved with doing the Camino? - come along to get all your questions answered by the experts. ??

Let us know if you'd like to attend the evening, please confirm your attendance with Mark - This email address is being protected from spambots. You need JavaScript enabled to view it.

Don’t worry if you are unable to attend in person as we will be doing a Facebook Live stream of the evening on Down Syndrome Ireland’s Facebook Page

Full details of our Camino 4 DSI are available on an information sheet - download here...

 

 

 

LETS BOUNCE

 

 

Bounce – a club night for adults with intellectual disabilities and their family and friends at The Button Factory, Dublin.

Bounce Club Night creates a fun, safe and accessible space for people of all abilities to socialise and dance the night away in a mainstream club environment.

Interested? -
Find out more here...

 

 

 

Keratoconus

 

 

We recently received an email from a parent who was very distressed following the late diagnosis of keratoconus in her 30 year old daughter who has Down syndrome. She described her experiences to us, requesting that DSI do more to raise awareness of this condition.

Keratoconus is an eye disorder which develops over time and is more common in people who have Down syndrome, often developing in late teens/early 20s. Early symptoms can only be picked up by an optometrist who is familiar with eye conditions in Down syndrome and who uses retinoscopy to specifically look for signs of keratoconus.

For more details read here...

Cardiff University has been leading the way in research on vision in Down syndrome, and the link below will take you to information on keratoconus research and the importance of early diagnosis and treatment in people who have Down syndrome.

Read more about the research here...

If you are concerned about keratoconus or any other visual issue we would encourage you to arrange a consultation with your optometrist or ophthalmologist for specialist advice and treatment.
 

 

 

 

Field of Dreams - Cork

 

 

Watch Sharon Mulcahy and John Kenneally chat with Maura&Daithi on RTÉ Today, the two talk about the success story that is the Field of Dreams, Cork and how Down Syndrome Cork is one of 25 branches of Down Syndrome Ireland that is actively supporting adults with Down syndrome to train, gain practical skills and prepare for the workplace. 

Watch the video here...

 

 

 

Ability Programme – Eoin Mc Hugh

 

Pictured: Eoin (L) and Thomas (R)

 

This is Eoin Mc Hugh, currently working as part of the bar staff at House Dublin, 27 Lower Leeson Street, Dublin 2. Eoin secured his job through our Ability Programme which aims to secure meaningful paid employment for adults with Down syndrome.

To help with joining a new team, Eoin was partnered up with a mentor – Thomas.

Read more about Eoin here!

 

 

 

Behaviour Conference Cork

 

Thursday, March 28th saw a sellout conference held by Down Syndrome Ireland Cork branch - the conference focused on common behavioural issues in children and adults with Down syndrome. 

The team from Down Syndrome Irelands Member Support Team presented to a full house of over 50 attendees...

Read more here...

 

 

 

Keeping Safe from Relationship Bullying

 

 

Down Syndrome Ireland Cork branch presented at the UCC Down Syndrome Research Forum on Friday,  29th March - the theme of the day was ‘Exploring best practice in speech, language and communication for people with Down syndrome and their families.’

Cathal, (front left) spoke about his experience of Speech and Language Therapy, giving a PowerPoint presentation and taking questions from parents, researchers and therapists.

Read more about the event here!

 

 

 

Down Syndrome Ireland School Leavers Conference 2019

 

 

Down Syndrome Ireland School Leavers Conference 2019 will be taking place on Monday the 29th of April in The Maldron Hotel, Tallaght.

Featuring guest speakers Brian Miller, Disability Manager and Dr Geraldine Scanlon, DCU - covering a wide range of topics:

  • Overview of the school leaver process
  • Types of post-school services available  
  • Further Education & Employment
  • Developing Independence & Decision Making Skills


To find out more information and to book your ticket, please go here...

 

 

 

UCC Down Syndrome Research Forum

 

 

The Anti Bullying Research and Resource Centre at DCU are delighted to announce an evidence-based training programme about  Tackling Relationship Bullying using the LEGO SERIOUS PLAY methodology.

A 5-week course that aims to equip people with intellectual disabilities with the necessary skills to deal with peer to peer bullying, conflict and anger. You will also learn about empathy, respect, rights and your responsibilities in keeping yourself and others happy and safe.

Find out more here!

 

 

 

Lámh Course Limerick

 

 

Family Lámh course being held in St.Gabriel’s School & Centre, Springfield Drive, Dooradoyle, Limerick.

The course will be held over *two dates in May - Friday 3rd and Friday 10th from 9 am - 2 pm.

For more information or to book please contact Eileen Mooney: This email address is being protected from spambots. You need JavaScript enabled to view it.
*(please note: both dates need to be attended).

 

 

 

 

 

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Last modified on Tuesday, 09 April 2019 14:58

Speech and Language Tips

Include your child in preparation for the new school year. Promote vocabulary development by talking about what is needed. Involvement in the process can make this a positive and exciting time.

Chairperson Message

Hello, my name is Paudie Murray and I am husband to Aoife and father to Rachael, Ciara and Hannah. Hannah who has Down syndrome is approaching her fourth birthday and is currently attending pre-school. Hannah is a unique individual with her own personality, family background and preferences that make her who she is. She is our child, our daughter, our sister but ultimately she is herself. Previous to Hannah’s birth we had little knowledge of the difficulties for people with Down Syndrome and their families. However, neither did we realise how rewarding it would be to parent a child with Down Syndrome. Hannah brings more joy and happiness to our family than anyone could ever imagine and we have learned so much already from her.

At Down Syndrome Limerick we are dedicated to being a primary source of information and support to people with Down syndrome and their families working towards an improved quality of life for our members and a respect for and acceptance of people with Down syndrome as valued members of our society. We place the person with Down syndrome at the centre of our organization and we value the uniqueness and diverse needs of our members and their families which govern all our activities.

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