• 2019:
  • All our Volunteers!,
  • Jack's Place Pub ceile €300,
  • Sinead Gleeson €500,
  • Donoughmore National School Ice Cream Day & all those who have hosted an Ice Cream Day to raise funds for DSI our national office,
  • Northern Trust Staff especially Sinead Loftus Jeans Day Collection €1213,
  • Patrickswell Community Playgroup Odd Socks Day €200 Thank you Grace & Friends,
  • Rusal Aughinish Alumnia Ltd.,
  • Kate Young & Cora Byrnes,
  • Milford NS,
  • Our Lady Queen of Peace NS,
  • Le Cheile NS,
  • Castletroy College Students Pizza Day €293.60,
  • Zumba with Darren €350,
  • JNJ Vision €10,000,
  • Alliance Medical for their help with our building maintenance and donation

Weekly News Digest - Down Syndrome Ireland

Dear Member,
We hope you enjoy this DSI Digest - a short, regular round-up of news from the DSI Team.

As always, we welcome your feedback. 
 

HB Fundays Campaign raises over €250,000 for Down Syndrome Ireland

Here is our See and Learn Project Leader Gavin and Office Administrator Ross hard at work getting more See and Learn packs ready to be posted for distribution to the parents and early years educators who took part in our training programme!

We are investing in the programme with funds raised through this year’s HB Fundays campaign with HB Hazelbrook Farm and we are so grateful to each and every one of the amazing HB Funday party hosts around the country this year who made this possible!

This year, you helped raise a WHOPPING €251,648 in aid of Down Syndrome Ireland, THANK YOU!

Continue reading this item here...

 

Down syndrome and arthritis

Our four year research project found that children with Down syndrome are 18-21 times more likely to suffer from Down’s arthritis than children without Down syndrome.

There is a lack of awareness of the increased risk of arthritis in children with Down syndrome, and this group is potentially at a greater risk of long-term complications. Down’s arthritis needs to be a significantly higher priority for all stakeholders. 

You can access the research findings and symptoms parents and the medical community need to look out for on our website here and here.

The research was undertaken at the UCD School of Medicine in partnership with clinicians in Our Lady’s Children’s Hospital, Crumlin and was supported by Down Syndrome Ireland, Arthritis Ireland and the National Children’s Research Centre.
 
Going forward, we would advocate that all children with Down syndrome have a musculoskeletal examination as part of their annual health review with their GP or Paediatrician. If you are linked in with a physiotherapist, they would be able to assess your child too. Then if concerns are raised, one of the above can refer directly to the National Centre for Paediatric Rheumatology (NCPR) in Our Lady's Children's Hospital, Crumlin. 

We are working to increase awareness about Down’s arthritis and are seeking increased resources for screening children with Down syndrome for the condition.

We have sought a meeting with the NCPR, with Arthritis Ireland and with iCan, the Irish Children's Arthritis Network. We will also make this one of our pre-election campaign issues. We had a productive meeting earlier this week with parents and advocates led by Aisling McNiffe at our national office in Ballymount on strategies to improve the situation for our children and for adults with Down syndrome.

Thank you to all the parents who took the time to attend and meet with us as together our voices are stronger.
Want to learn more about Down's arthritis, the aggressive, erosive, inflammatory arthritis that affects one in 50 children with Down syndrome. This explanatory video was produced as part of a student project at the UCD Centre for Arthritis Research.
 

Updated programme for our Donegal Conference - Managing Behaviour & Transitions for the Student with Down syndrome

Due to the very small numbers booking for our conference in Donegal on November 21st, the programme for the day has been revised and a number of new topics have been added. The topics will cover the age range from starting Primary school through to the Junior Cycle at Post Primary School.

The topics will cover:

  • Inclusion
  • Hearing, Vision & Medical issues
  • Literacy & Numeracy
  • Behaviour
  • Differentiation of Work
  • Supporting Continuing Speech & Language Development- Primary Stage
  • Supporting Continuing Speech & Language Development- Post – Primary Stage
  • Starting Primary School
  • Transition to Post Primary School & Junior Cycle.

To purchase your ticket for this Conference, please visit our site here...

 

When Kevin met Jade

Here is the fantastic Kevin Kilbane showing his support for the latest release from Not Just a Princess featuring Jade, a Special Olympics Athlete and lifeguard with Down syndrome.

Kevin was really impressed with this wonderfully illustrated inclusive children's book which is in association with Special Olympics Ireland and Down Syndrome Ireland

Get your copy of Jade's Fan-tastic Athletic Adventure here...

A must-have Christmas stocking filler!
 

OFFICE ASSISTANT NEEDED

Have you always wanted to work in a big office, helping to make it a safe and friendly place?

Unilever Ireland are looking for an Adult with Down syndrome to join their busy CityWest office team. As an Office Assistant, you will support your colleagues by completing general office tasks two days a week.

If you have a passion for things being organised and ‘as they should be' - Please do apply, you can find out more about the role on our site here

 

Jingle & Mingle - Christmas Party

Get in the festive spirit with some of Irelands top sporting legends at the Down Syndrome Ireland Jingle and Mingle Christmas Party - Join us along with our amazing host Today FM radio presenter of The Last Word, Matt Cooper and Special Guests: Niall Quinn and Paul Mannion for a delightful and delicious afternoon of entertainment, sport, networking and much more!

Find out more about the event here...
 

Thank you, Lauren ?

We were delighted to welcome the enterprising Lauren Williamson and her parents Maura and Frankie, from our Leitrim branch to our National Office in Ballymount this week. They presented our Head of Fundraising, Mark O’Doherty, with a cheque for the fantastic amount of €3,470. This was fundraised for Maura’s #Camino4DSI walk that took place at the end of September.

Lauren had a busy Summer selling delicious crepes from her very own Crepe Wagon, and along the way managed to raise an amazing €865 towards her mother’s Camino fundraising.

Thank you so very much, Lauren - well done and keep up the great work! 

Watch this wonderful interview with a truly inspirational woman Lauren, a member of our branch in Leitrim, not only runs her own business – Lauren’s Crepe Wagon - she also donates some of the proceeds to charity!
 

Online Christmas Cards

A fantastic selection of festive and fun cards that are sure to make your Christmas even more meaningful are now available to order from our online shop.
 
Down Syndrome Ireland charity Christmas cards (excluding Members packs) are available to purchase from Eason’s stores and selected retailers nationwide.  You can also purchase our cards in all of our 6 charity shops in Dublin.
 
Get ahead of the Christmas rush and order your cards today  - The last day for online orders is Friday the 13th of December 2019!
 
Spread some Christmas joy all while supporting a great cause.
 
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Last modified on Monday, 11 November 2019 09:59

Speech and Language Tips

It can be fun to reflect back on enjoyable times during the summer break. Use photographs of a day out, holiday or family event to recall these times and encourage commenting. These could be brought in to school or work to share as news.

Our Address

Unit 2 Castletroy Park Business Centre, Castletroy, Limerick.

Our Eircode is V94 D998

How to find us – We are opposite Castletroy Park Hotel & beside Castletroy Medical Centre, on the same Campus.

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