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Congratulations on the birth of your new babyparentlinkfootsteps

The birth of a baby, whether your first child or fifth, is an exciting and happy time
for the whole family. And you can rest assured that this occasion is no different.
As you’ll discover, the fact that your baby has Down syndrome is very much
secondary to the fact that he/she is an individual. Your baby has the exact same
needs as every other (which he/she, like all kids, will be sure to let you knowparentlink1
about!) and will bring you all the same joy and happiness in the world.

There is a lot of misunderstanding about why a child may be born with Down
syndrome. It is important you realise that the presence of the syndrome is not a result
of anything that you did or didn’t do. Down syndrome is a chromosomal condition -
it cannot be controlled and it’s not your fault.

Whether a baby is born with a disability or not, it’s a fact of life that some parents
cope better than others in caring for their newborn. So try not to criticise yourself or
be nervous – you’re certainly not alone. In fact, there’s an entire organisation of
people just like yourself who are willing to share your experiences.

What exactly is Down syndrome?

A syndrome is a name used for a collection of several features that usually occur
together. The name Down syndrome comes from Dr. John Langdon Down, an English
doctor who in 1866 first described the characteristic features of this syndrome.
Almost 100 years later, Professor Lejeune (Paris 1959) discovered why our children
share characteristics in appearance and have a degree of physical and learning
disability. The reason is actually based in the make-up of chromosomes.

What is a chromosome?

Chromosomes are minute particles within the cells of our bodies. Very simply, they are
the building blocks which determine our individual characteristics such as eye and
hair colour. Chromosomes are normally grouped together in 23 pairs (46 in all), half
of which come from the mother and half from the father. Most babies with Down
syndrome have an extra number 21 chromosome, making 47 chromosomes in all. So
our babies aren’t so different – instead they’re ‘children with something extra who
need something extra’.

Speech and Language Tips

Play a game such as 'Simon Says', taking turns to follow and give instructions. This is a way of promoting both listening and expressive language (at an appropriate level) while having some fun with action.

Chairperson Message of The Month

For my second and last message to you all, if you have been on holidays I hope you had a good time and enjoyed yourselves and if you are still looking forward to sometime off, have a good time and stay safe.

I would like to welcome Claire Walsh, on board, as a temporary replacement for Breeda.

The next big event we have to look forward to is the Tour de Munster BBQ on Thursday August 6. You will have received your invitation by this stage, via e-mail and post. Please make a big effort to come along and meet all the cyclists who are doing this cycle for all our members in Munster. Claire needs to know how many people we will be catering for, so please let her know as soon as possible if you are going attend.  Looking forward to having a big turn out for the occasion and hopefully I'll see you there

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