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Congratulations on the birth of your new babyparentlinkfootsteps

The birth of a baby, whether your first child or fifth, is an exciting and happy time
for the whole family. And you can rest assured that this occasion is no different.
As you’ll discover, the fact that your baby has Down syndrome is very much
secondary to the fact that he/she is an individual. Your baby has the exact same
needs as every other (which he/she, like all kids, will be sure to let you knowparentlink1
about!) and will bring you all the same joy and happiness in the world.

There is a lot of misunderstanding about why a child may be born with Down
syndrome. It is important you realise that the presence of the syndrome is not a result
of anything that you did or didn’t do. Down syndrome is a chromosomal condition -
it cannot be controlled and it’s not your fault.

Whether a baby is born with a disability or not, it’s a fact of life that some parents
cope better than others in caring for their newborn. So try not to criticise yourself or
be nervous – you’re certainly not alone. In fact, there’s an entire organisation of
people just like yourself who are willing to share your experiences.

What exactly is Down syndrome?

A syndrome is a name used for a collection of several features that usually occur
together. The name Down syndrome comes from Dr. John Langdon Down, an English
doctor who in 1866 first described the characteristic features of this syndrome.
Almost 100 years later, Professor Lejeune (Paris 1959) discovered why our children
share characteristics in appearance and have a degree of physical and learning
disability. The reason is actually based in the make-up of chromosomes.

What is a chromosome?

Chromosomes are minute particles within the cells of our bodies. Very simply, they are
the building blocks which determine our individual characteristics such as eye and
hair colour. Chromosomes are normally grouped together in 23 pairs (46 in all), half
of which come from the mother and half from the father. Most babies with Down
syndrome have an extra number 21 chromosome, making 47 chromosomes in all. So
our babies aren’t so different – instead they’re ‘children with something extra who
need something extra’.

Speech and Language Tips

Involve your child in food preparation, such as making a sandwich, to encourage recall and sequence. Ask your child to get some of the items needed and talk through the steps. You could take a few photos to recall the sequence and review what happened.

Chairperson Message of The Month

Hello, my name is Paudie Murray and I am husband to Aoife and father to Rachael, Ciara and Hannah. Hannah who has Down syndrome is approaching her fourth birthday and is currently attending pre-school. Hannah is a unique individual with her own personality, family background and preferences that make her who she is. She is our child, our daughter, our sister but ultimately she is herself. Previous to Hannah’s birth we had little knowledge of the difficulties for people with Down Syndrome and their families. However, neither did we realise how rewarding it would be to parent a child with Down Syndrome. Hannah brings more joy and happiness to our family than anyone could ever imagine and we have learned so much already from her.

At Down Syndrome Limerick we are dedicated to being a primary source of information and support to people with Down syndrome and their families working towards an improved quality of life for our members and a respect for and acceptance of people with Down syndrome as valued members of our society. We place the person with Down syndrome at the centre of our organization and we value the uniqueness and diverse needs of our members and their families which govern all our activities.

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