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Download our full Parent Pack

All people with Down syndrome are individuals with individual talents and
abilities. They are more like their families than anyone else. The only thing people with Down syndrome have in common is the syndrome itself.

Physically, they may share some of the following characteristics to varying
degrees. It is important you know that the presence or absence of these physical characteristics is of absolutely no relevance to your child’s development.parentlink4

     One in two babies will have heart problems, which can vary from a simple murmur
     to a more severe condition. This is quite common and most heart problems will be
     diagnosed in the first three months of life and are treated medically or surgically
     if required;

     Your baby’s muscle tone may be less than in other babies which means that their
     head and neck will need extra support;

     Your baby’s birth weight may be less than that of other babies and their feet and
     hands may be smaller, broader and sometimes chubbier.

The bright future ahead

The quality of life of people with Down syndrome has improved immensely in the
last thirty years. Just like the rest of us, they now enjoy longer life expectancy and
can live happy, fulfilling and active lives as part of the community.

It is also now the case whereby people with Down syndrome can be educated like
everybody else. In fact many now rightly expect, and are well able for, an inclusive
education and you should always encourage your child in their studies. In Ireland,
dozens of young people with Down syndrome have already passed state examinations
and reached other educational milestones.

Your child may also expect to work and live as part of their community, to form close
friendships and achieve whatever personal goals they set themselves. Share their
journey to independence with them and let them make you proud.

 

Speech and Language Tips

Involve your child in food preparation, such as making a sandwich, to encourage recall and sequence. Ask your child to get some of the items needed and talk through the steps. You could take a few photos to recall the sequence and review what happened.

Chairperson Message of The Month

For my second and last message to you all, if you have been on holidays I hope you had a good time and enjoyed yourselves and if you are still looking forward to sometime off, have a good time and stay safe.

I would like to welcome Claire Walsh, on board, as a temporary replacement for Breeda.

The next big event we have to look forward to is the Tour de Munster BBQ on Thursday August 6. You will have received your invitation by this stage, via e-mail and post. Please make a big effort to come along and meet all the cyclists who are doing this cycle for all our members in Munster. Claire needs to know how many people we will be catering for, so please let her know as soon as possible if you are going attend.  Looking forward to having a big turn out for the occasion and hopefully I'll see you there

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