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Your doctor will be more than happy to answer any medical queries that you may have and will make sure that your baby is as healthy as possible. To do this, they will carry out a comprehensive medical assessment as this is very important for your newborn child. This assessment will include height, weight, head circumference, a blood sample for Karyotype and any other investigations that may be appropriate.

     During the first six weeks of your baby’s life, tests carried out still include:parentlink8
     •  Heart assessment (to rule out congenital heart disease)
     •  Heel prick (normal routine metabolic screen for Phenylketonuria (PKU),
        Hypothyroidism, Maple Syrup Urine Disease (MSUD), Galactosaemia and
     •  Eyes examination (to rule out cataract)

A primary health team will be informed of your child’s diagnosis to make sure your
child receives the best possible care. In hospitals where there is a hearing screening
programme for newborns, your baby should also be included. In addition, you may
meet with a social worker and physiotherapist while still in hospital, or this may be
arranged within the first six-week period after your baby is born.

When you’re ready to leave the hospital, make sure you know when you will next be
seen and who you can contact in the meantime if the need arises. Always pick up the
phone with any queries you have – there are lots of people willing to support you on
your journey.

Your paediatrician is just one of a number of these health and non-health
professionals who will support your child and family. Other specialist doctors may
include those who look after the heart, hearing, vision and joints, if the need arises.
Therapists may include those who will look after muscle tone, feeding and language
development. All of these professionals will help you make sure that your baby gets
the best possible start in life.



Speech and Language Tips

It can be fun to reflect back on enjoyable times during the summer break. Use photographs of a day out, holiday or family event to recall these times and encourage commenting. These could be brought in to school or work to share as news.

Chairperson Message of The Month

Hello, my name is Paudie Murray and I am husband to Aoife and father to Rachael, Ciara and Hannah. Hannah who has Down syndrome is approaching her fourth birthday and is currently attending pre-school. Hannah is a unique individual with her own personality, family background and preferences that make her who she is. She is our child, our daughter, our sister but ultimately she is herself. Previous to Hannah’s birth we had little knowledge of the difficulties for people with Down Syndrome and their families. However, neither did we realise how rewarding it would be to parent a child with Down Syndrome. Hannah brings more joy and happiness to our family than anyone could ever imagine and we have learned so much already from her.

At Down Syndrome Limerick we are dedicated to being a primary source of information and support to people with Down syndrome and their families working towards an improved quality of life for our members and a respect for and acceptance of people with Down syndrome as valued members of our society. We place the person with Down syndrome at the centre of our organization and we value the uniqueness and diverse needs of our members and their families which govern all our activities.

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